Caring for Children Who Have Severe Neurological Impairment (A Johns Hopkins Press Health Book) [Kindle Edition]
Author: Julie M. Hauer | Language: English | ISBN: B00DTTWH0K | Format: PDF, EPUB
Free download Caring for Children Who Have Severe Neurological Impairment (A Johns Hopkins Press Health Book) [Kindle Edition] from 4shared, mediafire, hotfile, and mirror link
Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills.
In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.
Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Download latest books on mediafire and other links compilation Caring for Children Who Have Severe Neurological Impairment- File Size: 3891 KB
- Print Length: 480 pages
- Publisher: Johns Hopkins University Press (June 12, 2013)
- Sold by: Amazon Digital Services, Inc.
- Language: English
- ASIN: B00DTTWH0K
- Text-to-Speech: Enabled
- Lending: Not Enabled
- Amazon Best Sellers Rank: #415,655 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
- #16 in Kindle Store > Kindle eBooks > Nonfiction > Professional & Technical > Medical eBooks > Physician & Patient > Home Care
- #52 in Books > Medical Books > Medicine > Home Care
- #82 in Kindle Store > Kindle eBooks > Nonfiction > Professional & Technical > Medical eBooks > Physician & Patient > Medical Ethics
If you are a parent with a child who has severe neuro issues, you know very well that our kids don't follow the usual rules. They are so complicated that it can be extremely challenging to get any help for them. This book FINALLY takes a look at caring for these kids, and provides tons of options for the most common (and sometimes uncommon) problems they experience. It is also written in a tone of compassion and caring, clearly recognizing the value of these children's lives.By ThisMom
If you have a kid with severe CP, HIE, or any other severe neuro disorder, this is the one book you will want to buy. While it is written for a somewhat medically sophisticated audience, I think most parents will still find the medical info easy to understand.
In addition, every physician, nurse, and therapist who works with these kids should have a copy of this book in his/her possession. Most will find a lot of information in here that they likely have not seen before.
I spent most of the past 10 years trying to sort all of this out for myself (as a parent), and to have it all collected in one book will be tremendously helpful to so many people. I wish I had it 10 years ago!
This book is written at a GP and specialist level but it quite comprehendible by most caregivers. From medication tables to basic neurology backgrounder, to strategies for pain management, decision making, medical team building, and more ... Caring for Children With Severe Neurological Impairment is the go to book.By Dean Suhr
Finally a text written from the practical palliative care perspective - palliate care is not end of life care, it's optimizing quality of life.
We strongly recommend this book for anyone caring for a loved one, of any age, with neurological impairment. We've suggest this for every MLD Family we care for ... and we use it when caring for our daughter with MLD.
Dean Suhr, President, MLD Foundation
p.s. Full disclaimer ... Dr. Hauer is a member of the MLD Foundation's Medical & Scientific Advisory Board. We've known here for years and she is a regular at our MLD Family Conferences(tm) not because she wrote a book, rather it's because she knows her stuff and has always been able to apply the science and complexity of medicine in a practical hands on way with families. Having her wrapped up in a book (paper or digital) is all the better!
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